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Your LYME and Tick Borne Disease (TBD) information source,
for the Greater Mohawk Valley in Central - New York State,
established April 19, 2015
To receive the latest LYME information and support, Contact / Register with the Mohawk Valley LYME Support Group.
When you Register with a FaceTime or Skype id, we will make an attempt to include you remotely in the group meetings.
Phone (315) 570 - 3402 :(at this time we cannot return phone calls, please either email, text message or attend next meeting.)
www.mohawkvalleylymesupportgroup.com Facebook: https://www.facebook.com/mohawkvalleylyme
Location and Time of meetings may have Changed.
Please register to receive notice of next scheduled meeting.
Cancellations sent by Email or Text Message (cell phone number required)
LOCATION: Monthly meetings are usually held in Utica once a month, and for special events. Please email to find current meeting schedules. Check Schedule for current events and meeting locations. You may also call the above number for directions and more information.
SERVING: Mohawk Valley, New Hartford, Whitesboro, Utica, Herkimer, Old Forge, Rome, Remsen, Boonville, Lyons Falls, Glen Field, and all areas in-between.
LINKS: LYME has been around for many years and these links will take you to other groups who have been dealing with this health issue.
CONTACTS: We are a volunteer group, whose members have felt the effects of LYME and would like to help others avoid longterm health issues resulting from a lack of knowledge. Our group is open to sharing our many years of experience with LYME, doctors and other treatments. Please email us for the next scheduled meeting.
NOTICE: Tick testing may save you from a concern about seeking treatment after a tick bite.
For more information: http://www.tickdiseases.org/tick-testing/what-is-tick-testing/
A well organized LYME Information website: http://lyme-basics.com
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The reason for this may surprise you: mice. (click on heading for more information)
PREVENTION: SAWYER TICK REPELLENT
Used to treat outdoor clothing. Lasts through several washings. Known to kill ticks also. In Utica, I have spotted this in Herb Phillipsons sporting goods stores.
Antibiotics, Herbals and a Combination of both.
The latest results show that out of 7200 lyme cases, about as many people benefited from Antibiotics as did from a Herbal treatment, with about 12% using both types of treatment. Many Lyme patients find that Herbals are the only way to sustain a level of functional health after a failure of Antibiotics to reach a full cure. You may want to contact www.WoodlandEssence.com or www.HawthorneHillHerbs.com for herbal solutions.
In memory of all those who have suffered with LYME & TBD infections, we tell our stories.
See more of the LYME Patient stories by clicking headings, or select tab - My LYME Story / Local NY LYME Stories.
My short version would be: Never saw a tick or rash but symptoms were flu like sudden onset Labor day 1988. R. - Utica, NY
I was raised on a farm, spent much of my childhood outdoors and experienced many ticks through my teenage years. J. - Boonville, NY
On 8/11/15 , late in the evening I had a temperature of 104 degrees and my body hurt from head to toe. I,- Frankfort, NY
Nov. 2016, developed numbness in left arm and then side, by Jan. 2017 also affected right side, and by Feb. Lyme has affected chest / breathing muscles, and required nursing home care. After having negative Lyme test and ending up in nursing home, NYC doctor got a positive Lyme test and co-infections, and started treatment for LYME. This is an active case, a result of not taking Lyme as a serious disease with early treatment. K, - Boonville, NY
GRIEVING THE LOSS OF A CAREER TO CHRONIC ILLNESS, LYME
Chronic illness has changed me. It changed the way I see the world and changed my goals. Even if the only goal right now is just to get better, I can’t think of a more noble one than that.
Read Kerry’s previous blog, “The High Cost of Telling Someone You Don’t Look Sick“.
A Must Read (click here): A Deep Look at the Symptoms of Six Major Lyme-Related Infections
INFLAMMATION, HISTAMINE and a Treatment: MCAD is a condition whereby the body releases an excessive amount of mast cells, which are immune cells that release histamine and cause inflammation in the body.
"..the use of ineffective antibiotics against bacteria [is like] trying to kill dandelions with a lawnmower. "
Lyme Disease: A Hard Road to Diagnosis and Recovery (Epoch Times)
"The ELISA test is the first screening, and it misses two thirds of the people that have Lyme." A must read and an informative interview with Dr. Ann Corson, SE PA. Dr. Corson has treated some in our group for LYME.
We hope this website will provide some valuable information which may help you to have a healthier life.
Lyme is an age old disease which has been newly discovered. In many parts of the country, doctors are still just getting their feet wet in dealing with Lyme patients. Unlike many ailments, there is no one treatment that works for all. Many people are having relapses or continuing symptoms, leaving the doctors guessing what is the cause. Help us speed up the learning process of the medical community by making people aware of Lyme and where they can get resources. If you are a Lyme patient, please email us with where and when you may have gotten infected to help document the spread of LYME disease.
We will be building a list of Mohawk Valley NY area doctors who treat Lyme and what the patient's experience with them was. If you have seen a doctor for a Lyme infection, information on your experience with this doctor would be appreciated. This information will be available at the Lyme meetings for those interested. (Sorry, we can not disclose this information over the web. If you cannot make it to a meeting, please call (315) 570-3402 )
The spread of LYME disease has increased dramatically since this 2014 report. Also, this report is according to CDC guidelines which limits which cases may be reported and even those cases are not all reported because of the political issues surrounding the treating of LYME in patients.
Ticks are spread each year by migrating birds, establishing new tick colonies throughout their flight path. We must be prepared for this growing vector of human infections through prevention and rapid treatment of LYME and the co-infections.
Purpose:
The Mohawk Valley LYME Support Group welcomes all who have a concern about LYME and Tick Borne Diseases ( TBD.) LYME and the co-infections of TBD are becoming a larger concern and more serious health problem of the Mohawk Valley, Tug Hill and the Adirondacks. The Mohawk Valley LYME Support Group was formed in an effort to bring timely information to patients and families in these areas.
LOCATION: Monthly meetings are usually held in the Unitarian Universalist Church of Utica, on the third Sunday of each month from 2 - 4 PM. Check Schedule for current events and meeting locations.
SERVING: Mohawk Valley, New Hartford, Whitesboro, Utica, Herkimer, Rome, Remsen, Boonville, and all areas in-between.
LINKS: LYME has been around for many years and these links will take you to other groups who have been dealing with this health issue.
CONTACTS: We are a volunteer group, whose members have felt the effects of LYME and would like to help others avoid longterm health issues resulting from a lack of knowledge. If we can be of help in your effort to achieve better health during or after a tick bite, please feel free to contact the group.
"Under Our Skin".The movie is praised for explaining LYME and what people are experiencing in the process of getting treated. If you are interested in seeing or having the movie(s) "Under Our Skin" or the followup movie "Emergence" shown, please email MVLymeSG@gmail.com
SURVEY, LYME Disease.ORG
A LYMEdisease.org project. MyLymeData uses big data research tools that allow patients—even thousands or tens of thousands– to quickly and privately pool their data to determine which treatments work best. This research begins with you. Simply click on Register Now! to begin
Take the International LYME survey and help the medical community understand the LYME epidemic. SURVEY
SUPPORT - EDUCATION - RESOURCES
Disclaimer: Information on this site is offered to help further awareness of Lyme and associated diseases. We hope that the information will help you to become more familiar with the subject of tick borne illnesses, but the information on this web site should not be used as a substitute for medical advice, diagnosis, or treatment. The information on this web site does not represent endorsement or an official position of Mohawk Valley Lyme Support Group or members. Please consult a physician for all medical advice, including advice on testing, treatment and care of a patient who has or may have Lyme or any associated tick borne diseases.